Today began the first day of medications along with vitamins. Oh so many pills taken today. The silver lining is I am going to be feeling better. I’m so over my health restricting me from the life I want to live.
I began a different blog in 2007. The year I had gastric-bypass to help with the weight gain from PCOS (Poly-cystic Ovarian Syndrome). The surgery worked! I lost all the weight and then some and I got regular cycles and even conceived my second child without any issues but that didn’t mean the PCOS was gone.
In 2016 I suffered a SCAD Heart Attack after a very rough part of my life. The darkest part of my life for that matter. Though my heart attack had nothing to do with a typical heart attack and I was sent home at the beginning of my heart attack because “I didn’t look like someone having a heart attack” being thin and in pretty good health and it took me going back for them to take me seriously I was still put on medications for high blood pressure since I was then diagnosed with Fibromuscular Dysplasia and Micro Cardiovascular Disease. Both affect the arteries and cause me to be at high risk for another heart attack or stroke.
From the use of these medications, I gained 60 pounds. As someone with body dysmorphia from the rapid weight gain and loss, this is hard on me. Why? People are cruel to overweight people and ASSUME that they overeat and don’t exercise and don’t care for themselves. This is 100% not always true. There are many health conditions that cause weight gain. PCOS being one of them and my PCOS is also in full swing again and I am also not absorbing nutrients. From all of this, I’ve tried to exercise and do things correctly based on my medical history but have not been able to since my body is out of whack.
I finally gave up doing this all alone and met with my primary care physician who then had me getting iron infusions, meeting with my cardiologist, and meeting with my new neurologist. Between all of my doctors, I am on new medications and a ton of supplements (photo and daily schedule below) that will help me feel human again and help my body to lose weight. My primary also let me know my body has gone into shock and when it does this a body will hold onto weight. I am willing to do as instructed so that I can get back a part of me I lost with my heart attack. I was active and felt good. Right now I don’t feel so good. My hope is that by doing as instructed by my medical team that over time my body will get back to a good place.
I want to be an example, as I was before that we can recover. It is not always easy, the path to healing but I know, as I have done it before, it can be done. To keep me accountable I will be utilizing the blog that I pay for and ignore. When I blogged my journey before I wrote on the struggles and the triumphs. I posted gluten and dairy-free recipes. I was living life and my blog turned into something different than it started as. My hope, as I continue to heal and really take care of my medical needs that I can get my blog there. I hope that seeing my journey can help others with PCOS or SCAD Survivors see it can get better. It isn’t a quick process and I need to remember that too. I am ready to see where this journey takes me and I’m grateful to have you along.
I recently changed healthcare insurance. Through work I now have Kaiser. My first experience with Kaiser was not good. I’ve gone through a lot since 2016. Before that my PCOS was under control and I was a happy size 6/8 from 2007 to 2017. Fast forward to now and I recently stopped heart medications that caused rapid weight gain. I’ve lost six pounds since then. It’s a much slower process when I can’t work out the way I want with Fibromuscular Dysplasia and having PCOS. However, I am doing it. I will get back down to my pre-SCAD (Sudden Coronary Artery Dissection) Heart Attack weight. Back to the physician…
This physician informed me that he’s known 10 people who’ve had gastric bypass and all 10 gained their weight back. He let me know medication and PCOS aren’t valid reasons for weight gain and he enrolled me in Weight Management classes. Did I mention I declined those classes?
I did have a good second experience with Kaiser and the OBGYN assigned to me is going to help me find a PCP who understands my conditions and doesn’t loop everyone who may need to lose weight into one bucket.
Do these physicians not understand that people aren’t all the same? Do they not know that someone like myself can walk into their office and leave with their body dysmorphia heightened because of the way they speak to a patient they’ve only met once? This brought me right back to being sent home in the middle of my heart attack because “I didn’t look like someone who would have a heart attack”. If I went into today would they have taken me seriously? I just don’t understand.
My blog will be more about PCOS again. I can’t be the only one who gets this kind of treatment from physicians, I can’t be the first one who works so hard to be told insensitive things. It makes me so angry and sad how I and so many are judged. I don’t have to defend myself and my eating habits and I don’t need to be judged without truly knowing my medical history. I need support from my physician and unfortunately, my first experience with Kaiser wasn’t that.
Here’s to being my own advocate and continuing to fight for me and my health.